Nizam’s Institute of Medical Sciences, Hyderabad (4.53%) is among the CoERDs with the least utilisation of funds. | Photo Credit: G. KRISHNASWAMY While nearly 2,420 patients have been enrolled with the 11 Centres of Excellence for Rare Diseases (CoERDs) in India, data furnished by the Union Ministry of Health and Family Welfare in the Lok Sabha during…
While hearing a petition filed by a 24-year-old suffering from spinal muscular atrophy seeking government help to fund treatment which would cost over Rs 2 crore per year, the Kerala High Court sought details from the central government regarding its crowdfunding initiative.The digital portal for crowdfunding and voluntary donations for patients of rare diseases shows…
LUCKNOW: A child with ‘rare among rare diseases’ has found a new lease of life at a city hospital. The 14-year-old patient was diagnosed of Activated PI3K Delta Syndrome (APDS) – a kind of rare disease grouped under Rare Primary Immunodeficiency Disorder (RPID) about seven years ago and was on maintenance medication since then.“We have…
